Join the PACT Action Network
The Patient Access to Community Treatment (PACT) Coalition Action Network is a grassroots organization of patients, providers, family members, caregivers, and volunteers who have experienced first-hand the value and patient-centric benefits of community-based care and advocate behalf of policies that will help preserve patient access.
There are many ways for PACT Action Network members to advocate on behalf of the patient-centric benefits of community-based care:
– Contacting your congressional representatives both in your home districts and Washington, D.C. to share your stories and advocate for necessary policy solutions supported by the PACT Coalition.
– Writing letters to the editor and other press outreach, which can be placed in local and national media outlets to raise awareness of the benefits of community-based care.
– Sharing your experiences via video or audio, which can be widely disseminated through PACT social media outlets.
– Participating in a PACT Action Network lobby day, where you can advocate with other individuals in a congressional fly-in.
PACT Patient Voices
Below are testimonials from patients and advocates highlighting their unique experiences with community-based care:
“As a 12 year cancer survivor, I’ve had multiple patient experiences, ranging from the shock and fear when diagnosed as a young mom, to the ongoing health concerns faced by all cancer survivors. Throughout this time, the love and support of my family and friends, and the continuity of care within the community cancer care clinic continues to give me hope by providing the familiar setting that all cancer survivors find comforting.”
– Rose Gerber, Patient, Community Oncology Alliance Patient Advocacy Network, Connecticut
“A cancer diagnosis changes someone’s life dramatically and being able to get treatment close to home becomes increasingly important. Traveling while undergoing chemo can be difficult on the patient and the caregivers. We’re committed to reducing barriers for community-based patient care so that patients can get the treatment they need.”
– Crawford Clay, Patient, Colon Cancer Alliance, Virginia
“Having high quality, caring and easily accessible oncology treatment available to me in a local community setting relieves travel stress, time and expense allowing my focus and energy to be directed to my treatment. The peace of mind knowing that in an emergency (which has happened) I am only minutes away from my oncologist is invaluable.”
– Howie Braun, Patient, Maryland
“I currently receive treatment at an oncology clinic that is about 15 minutes away. If I were to lose access to my clinic, my only other option would be to seek care at Yale, which is over an hour away. It would be very difficult for me to make this transition, as I would literally be dependent on someone giving me a ride.”
– Ron, Patient, Colon Cancer Alliance, Connecticut
“These doctors treated my illness and they saved my body…but their love and true concern for me saved my heart. I was SOO sad when we moved from the Springfield Missouri area because I knew I would lose my original team. I still feel a warm fuzzy feeling when I drive by Cox South Hospital or the Hulston Center because they saved my life.”
– Charise, Patient, Colon Cancer Alliance, Missouri
“As a long-term survivor of kidney cancer, one of the less common cancers, I recognize the importance of having access to a community-based cancer treatment center that follows the latest guidelines and standards for diagnosis, treatment, and monitoring and follow-up care plans. It is indeed a challenge for local institutions to stay abreast of the ever-changing innovations and procedures in the cancer continuum. I applaud those practitioners and facilities who are making those efforts to deliver the best in care for their patients.”
– Michael B. Lawing –Survivor/Volunteer, Kidney Cancer Association, North Carolina
“The patients we serve routinely cite transportation issues, and the costs associated therewith, as a major issue they face related to their treatment. Affordable, quality health care in the community setting is critical to minimizing the many logistical and financial challenges patients endure, like transportation. Patients – particularly those with low or modest incomes – need to focus on their treatment without jeopardizing their economic well-being.”
– Alan Balch, CEO, Patient Advocate Foundation and National Patient Advocate Foundation
“Senior citizens face many financial and logistical challenges when accessing health care. Policies that may require seniors to incur increased expenses, to travel longer distances to obtain care and place additional burdens on their family members and caregivers are counterintuitive to the promise of accessible health care. Seniors deserve the commitment to provide the highest quality of care that is affordable and accessible.”
– Thair Phillips, CEO, RetireSafe
“I am an unresectable stage IV colorectal cancer patient. With that diagnosis, I’ve been in continuous active chemotherapy for over 3 1/2 years and I love my medical team (family). I liked the core member of the team; my oncologist, nurse practitioner and their office staff and nursing group, along with my social worker, and infusion nurse. I had to change infusion nurses about three years ago. I’ve been in the hands of my current infusion nurse for the past 2 1/2 years and we’ve become friends. The core now includes a psychiatrist and a palliative care oncologist. Along with those professionals, other staff have been more than competent, their personal caring and warmth has been making my journey more livable. My team has connected me with a world of great doctors with wonderful staff. I love my team.”
– Randy, Patient, Colon Cancer Alliance, Massachusetts
“Our organization supports people living with cutaneous lymphoma, a rare, non-cureable lymphoma. Access to clinicians who specialize in this specific form of cancer is critical to our patients getting an initial diagnosis as well as being provided the best treatment plan for their individual stage. Patients living with this type of lymphoma require treatments for the rest of their life once they are diagnosed. For many people it means not only being seen by a specialist at one of the major cancer centers, but having a local team that works collaboratively with the specialist to deliver treatments locally. As a patient myself living with this disease for more than 23 years, I appreciate the additional financial and emotional burden that comes with a chronic cancer. Having local access to treatments is critical for people to maintain their quality of life.”
– Susan Thornton, CEO, Cutaneous Lymphoma Foundation, Pennsylvania
If you have an interest in sharing your story on the value of community-based care and joining the PACT Action Network, please contact firstname.lastname@example.org.